We have always wanted a section on our site just for you...a place to share your story, connect with others, rejoice in good news, or share your grief. Feel free to upload a photo, write a sentence...or a paragraph, exchange experiences. This section is yours to do with as you like...we are simply here to offer you a link to the rest of the cancer world.
Amanda - Lost my grandmother on Friday - April 11, 2017
My grandmother was diagnosed with Liver cancer two years ago, and she passed away on Friday, April 9th. She was a big part of my life and a huge supporter of me. When my first career tanked, I decided to go back to school for a different major than I am pursuing now. On my birthday last year I had this epiphany that I wanted to go into Horticulture and become an organic farmer. She was praying for me that day, and probably at that very moment. I called her to tell her what I decided and she was ecstatic! We laughed because she grew up on a farm, but married a city boy and never wanted to live on a farm again, but she was so supportive of my goals, even if they were not something she herself would have liked to do. I was the first grandchild and I was named after her. We had an almost psychic connection via the telephone. I called her fairly frequently (Young people: CALL YOUR GRANDMOTHER!!!) and many times she would say "Oh, Amanda, I was just thinking about you when the phone rang!" I was blowing up my mom's phone at the moment she passed away (because my mom was by her side)... I didn't know consciously that she was passing, but it's like I knew.... I can't explain it. But it gives me chills. I just purchased some emerald green buttons and keychains for my backpack to honor her and go with all the pink ribbons already adorning it. I have two different types of breast cancer in my family, and my grandmother just passed away of liver cancer. I just wanted to share that and get it off my chest. Jackie was the nitrogen in my garden, she gave me fuel to grow. I dedicate my Hort life to her, and the scholarship I recently received. My heart goes out to everyone who has lost someone to any kind of cancer, and if we all band together we can find a cure. Brightest Blessings!
Karaley Joyner - When I was Young... - March 23, 2017
Hello Im am 14 years old and i was born with CLL. CLL stands for Chronic Lymphoctic Luekima, I was also born with AHA. AHA is a disease were my antibody's eat my red blood cells and they slowly die off. My CLL has gone away now and i have been in remission for a long time, But sadly i still have my AHA. AHA stands for Auto-Immune Hemolytic Anemia. It causes me to have muscle fatigue, Random Vomiting and some other bad stuff. But with the help of doctors and other people around me i learn to get through it. My friend Kendyr Helps me get up sometimes, or walk when its hard. And my friend Halie knows when to make me laugh. Every few months i go to the doctors to get my blood levels checked, But since Last year they have been going down. Doctors believe that my Cancer may come back. Due to my white Blood cell count. But i hope not. For all those people out there having to go through radiation and chemo....I feel ya, It hurts. I understand. But thanks for Reading my story. Happy Auto-Immune Awareness month!
Shawn Mauldin - TC 1/31/2017 - February 21, 2017
I'm 28 and less then a month ago on 1/31/17 I received my diagnosis of testicular cancer. I had surgery to remove my left genitali on 2/2/17. It developed on the outside. CT scans show signs on my lower lymph nodes and will be starting BCP regiment of Chemotherapy on 2/27/17 and have at least 3 cycles planned. Took my chest CT on Saturday and will be going over the results on the 27th fingers crossed it hasn't developed that far.
Linda L Doom - stage 4 head and neck survival - February 12, 2017
In January of 2014 I went to the dentist because of a tooth problem and he found a tumor under my tongue. He sent me to an oral surgeon who took a biopsy and found that I had stage 4 cancer of the mouth and tongue. On February 11, 2014 I went to the University of Michigan and had surgery . They replaced my jaw, three quarters of my tongue, and took out three lymph nodes. The doctor at U of M gave me one choice, either have the surgery or go home and prepare to die. I chose to live knowing that my life would never be the same again. I had a feeding tube for two and a half years, I had to learn to swallow and talk again. I had the chemo and the radiation to stop the cancer from spreading. Throughout my recovery I had a great support group. I had my days of depression and wanting to give up but they seen me through it. It has been three years since my surgery and I can say that I am now in full remission. I have to eat my food pureed but I can eat most anything. I do not have the feeding tube. I talk fairly well with few problems. I am alive and have been truly blessed with family and friends who care. I went into this with a positive attitude, and stayed alive with a lot of work. The doctors did not tell me everything about what my life would be like afterwards. It is a learning experience, one in which I would like to share with those patients and families who are going through a similar situation. God bless those who walk this cancer journey.
Wendy Basehore - I'm not alone, Imma beat this! - February 9, 2017
Hi, my name is Wendy and I am 45 years old, single mother of 4. It all started as a lump in my neck/collar bone area around end of September......I was not sick, I had no symptoms, nothing.....other than the lump. Went to doctors, test after tests and biopsy, it turns out i was diagnosed with Non Small Cell Lung cancer, Stage 4. As to my surprise, I was a little confused? How in the world could i have Stage 4 lung cancer and not even know it? Needless to say i am a fighter.......had my first bout of chemo on January 30th. Not an easy battle, I have faith in God that he will heal me and to much to my surprise my doctor was even shocked to see how much my lymph nodes have gone down with just one treatment! I explained to him, God has the last say! Not the doctors, etc. He will heal me and he will fix me! He's told several people he is NOT done with me yet! For everyone else out there battling this vicious disease I will pray for you and your family to get through this the best way possible.
Alison Damon - Carry On: The Kristin Damon Story - February 3, 2017
Our cancer story begins at the end of 2012 when my grandma, Sonja Damon was diagnosed with Stage II Breast Cancer. During her months of treatment, she experienced the painful effects of chemotherapy, radiation and hair loss. As Sonja continued her treatment, the cancer inside her began to shrink. With remission in sight my family was feeling hopeful. Then the story changed. Sonja had conquered her cancer. But cancer wasn't finished with my family yet. This was just the beginning. My grandma was in the middle of her last round of chemotherapy when my mother started to feel unbearable pain in her lower abdomen. Frequent visits to the doctor uncovered a mass on her colon and a cyst on her ovaries. A surgery quickly followed along with scans, blood samples and tests to uncover that the mass inside my mother was malignant; cancerous. My mother, Kristin Damon was diagnosed with terminal Stage IV Colon Cancer. As my mother endured many months of painful and intense chemotherapy I began to see changes in her. Her hair began to thin, her memory started to slip away, her joints became weak, her hands—my favorite feature of hers— frail. Her first round of chemotherapy proved effective as a PET scan showed Kristin cancer free! During Kristin’s time away from treatment, she spent her “chemo-cation” doing the things she loved. When my mom wasn't traveling, or spending time with her family she was baking, crafting, singing, dancing, scrap booking and most importantly writing. My mother was an incredible author and wrote 22 novels and created a children’s book series. In 2015 a follow up PET scan revealed our worst fears. Kristin’s cancer had returned, only worse. Frantic, my dad found hope through the Huntsman Cancer Institute where my mother was to receive her new round of chemotherapy and immunotherapy. The cancer that was killing Kristin’s body may have impacted her physically, but it never took away her loving, humorous, and strong character. My mother fought hard, enduring multiple days of infusion every other week. She never let on to how bad the pain was. She never complained about the effects the chemotherapy had on her. She laughed. She loved. She lived. The deadly effects chemotherapy brought upon my mother lasted for 2 ½ years before her doctors at HCI stopped all treatment. On February 10th, 2016 at the age of 43 Kristin passed away surrounded by heartbroken loved ones that would always feel the void of the warm, witty and wonderful Kristin. I never thought I would see anything more horrific than watching my mother go through cancer but her death proved worst. You never expect to lose a parent when your young; the phrase “you never know what you have until it’s gone” describes the loss of a parent perfectly. My mother was and will continue to be my hero. She raised me to be the person I am today and I am forever grateful for the time I had with her, even if it was short. My family and I have created The Kristin Damon Project as a means of keeping her legacy alive. By sharing her novels and donating to the Huntsman Cancer Foundation for research in Kristin’s name we hope to help eradicate cancer while sharing her talent with the world. Thank you for taking the time to read our story and thank you for the support you offer to cancer patients and their loved ones. As my mother would say Carry on, Alison Damon.
Robyn - My Caregivers Ribbion Means the WORLD to ME !!!! - January 13, 2017
I was SOOOOoooo Excited when I saw Your Caregiver Ribbons !!!! I Was the sole care Taker of My ONLY 2 BEST Friends in the World. Hospice Helped but Everthing they instructed me to do I was ALREADY on top of.... Many of the Nurses & Aids that came through the door, Told me I should be in this Field , & That I was better at this than THEM !!! My Responce was ALWAYS the Same..... I am NOT Emotionaly Strong Enough to do their Job on a daily Basis !!! My Mother , RIP , was a Nurse so most of the care taking was simple common sence to me. First my Bestfriend & roomate was dianosed with ADVANCED Prostate Cancer at 46, later found it to be due to Embral shots he was perscribed for Rheumatoid Arthritis. The week before he Passed , MY ONLY Other BESTFRIEND in the WORLD Was Diagnoced with Stage 4 Lung Cancer , With 4 Brain Toumers. She was able to make it to HIS Wake , However the Day of his Funeral she missed due to her Hospice Intake Appt..... Many people asked how I could take care of them on a daily bassis , Giving Meds , Oxegen , Sponge Baths , Changing their Cloths , Sheets , & Even Dipers.... It was Extreamly Hard for Friends & EVEN Some FAMILY to Visit them once Hospice was involved... I ALWAYS Answered the "How do YOU do IT Questions the same. "It's the way they want to go... As Safe & Comfortable as Possible!!! Peacefully , Snuggled in their beds , In Their Cloths , & Mostly , IN THEIR OUN HOME !!! " It was very Emotionally straining, But THEY got me through it, with every Loving & Appreciative Breath they took.... I Knew in the Depest Depths of my SOLE , Had The SHOE Been on the other FOOT , Either/Both of them would have bent over BACKWARDS to due the Same For ME !!!! RIP !!!! Jimmy & Charlene Love Always Your Bestie Robyn
Brian McMillan - Renal Cell Carcinoma Survivor! - December 28, 2016
What started out as a fun date night with my amazing wife turned in to the worst night of my life. Out at a wedding reception, I went to use the restroom and started urinating blood and blood clots. Later that night, the pain in my back was so severe that my wife took me to the hospital. Thinking I likely had kidney stones, a couple CT scans soon revealed a large mass on my rightmost kidney, with the doctor delivering the shocking news that I had cancer and would have to lose my kidney to remove the tumor. As a 34 year old, healthy male with no prior conditions or family history, my wife and I were overcome with emotion. After dealing with intense symptoms over the next several days, we decided to skip the biopsy and get the surgery scheduled as soon as possible. The surgery was extremely successful, removing all of the cancer from my body, with the pathology report confirming chromophobe renal cell carcinoma (a very rare subtype of renal cell). I am currently on the long road to recovery, typing this story on plenty of Percocet :) Without the immense prayers and support from my friends and family, I would have never been able to make it through this incredibly difficult time in my life, and for that I am forever grateful. Through all of this I have learned many things but most importantly, don't take life for granted and anything is possible with the power of love and support!
cheryl king - Ms - December 27, 2016
Hi. My name is Cheryl and in October, 2011 I was in for my physical and was scheduled for my usual mammogram. I had it and was called back for another test called a Stereotactic biopsy and it showed cancer in my ductal gland of my right breast. My surgeon and I with one more by option to try was to do a tissue biopsy and so it came back that it was so close to the margins that he recommended a right Mastectomy and so on November 21, 2011(my new-other birthday) a few days before Thanksgiving, I underwent the surgery. I was sent to an oncologist to see if I needed chemo and he said no; then I was sent to a radiologist for possible radiation and she said no. I am thankful and pray that it never return, but we live with that fear everyday. I am a Christian and there is no breast cancer in my family and my surgeon says that happens. I am amazed at how resilient cancer patients are. I continue to have my routine mammograms as before because that is why mine was detected early enough to take care of. So to all of my sisters/brothers hold on, stay the course and we can do this. My Oncologist says he will release me since my 5 years are here and I've been on a pill since 2011. Keep me in prayer as I will you all.
I was diagnosed with cancer in March of 2014. It was discovered in my blood work and that I actually had it since 2013. I am a US veteran both Air Force and Army Reservist. When the news was brought to me I was in shock. I'll turn to God and he provides the answers he will never leave me nor forsake me, we're not alone. Follow my story on Facebook warrenterryknight. God bless you all.
mike anderson - Testicular cancer - December 16, 2016
Hi my name is Mike I'm from mo an I'm an x army ranger this is the 2nd time in 4 yrs I've had testicular cancer except this time it spread into my lower back around my kidneys an I have a 9 yr old son an I'm 46 yrs old I'm gonna educate ppl on my cancer cause u don't hear about it often but it's upto me to spread the word on this god bless everyone
Carol Lee - Mrs - November 15, 2016
Ron Troyer was diagnosedwith lung & esophgus cancer in Feb.of2016. He took his FMLA from work while undergoing chemo. He beat it & was cancer free in June. He went back for his 3 month checkup to find he is stage 4 liver & bone cancer! He livesin Kewanee,Ill with his fiance' of 7 years Esther Smith. She is also disabled& on SSI. They also have Esthers grandkids living with them full time. The oldest is Kyle. He is 9 years old but suffers from ADHD & is Austistic. The younger is Heather & she is 8 years old. Ron is still working because he has no more FMLA at work & needs the income. They are buying their house & get a better car to get to appointments. 3 weeks ago he got his 1st double dose of chemo. then he had bloodwork done to be able to get his 2nd dose, buy his white blood cells were too low. No Chemo. Last week he went for blood test & his platelids were too low. No Chemo. Today he goes back for blood test & see his Dr to see whats next. I have a fundraiser on Jan. 14th at the American Legion in Kewanee.He really needs any help anyone can do. I'm afraid he may not make it till Jan. Ron came & lived with my brother & me when he was 15. He has been my brother ever since. If anyone can help me with the fundraiser, I would greatly appreaciate it also. I have no idea what I'm doing. Please help Ron! He needs to quit working! Thank you more than you know!
Ellen Channel - My Story. Utrine Cancer - November 8, 2016
One year ago August 27th. My husband and daughter took me to emergency @ Baylor Scott and White. I was bleeding internally. Dr.Messing was called in because I was on the point if death. Doctors told my family I may not make it thru surgery. I had to have 14 units of blood before I could have surgery. My utris was three times it's size, it killed both my overies , my appendix, part if my lower intestine and part of my bowel. After surgery I was in the hospital and acute care rehab hospital for 41 days, then after two weeks rest weak as a puppy starting chemo I did 19 agressive chemotherapy treatments and had 10 more units of blood and neulasta shots in my stomach. I rang the bell on my last chemo on April 12 th. Now in November I'm in limbo for awhile because we are watching three spots. Side effects suck I have severe neuropathy in my feet , legs and hands. I'm doing Cryotherapy and it seams to be helping, five nights in a row I've slept thru 2:30 dose if pain meds and Gabapintin. ( Woo hoo). Stage four Utrine cancer has not whipped me yet. Thanks to Dr.Messing, the Nurses and Staff at Texas Oncology. Prayer and an awesome team of Doctors and Nurses are the reason I'm still here..
Jill Walters - November 7, 2016
Hi...my name is Jill and I was diagnosed with stage 4 colon cancer and it has spread to my lymph nodes and liver and possibly the adrenal gland...I was diagnosed June 21, 2016 during a colonoscopy...I didn't have any signs of being sick until Oct 2015, I have had 7 rounds of chemo, the chemo sucks but has done what it was supposed to. I am 49 yrs old and do not have a family history of it...although my mom had breast cancer 23 yrs ago and is a survivor...I have started the genetic testing and found out that I have the gene that is linked to colon and breast cancer...hopefully I can help someone in my family before it gets them...I am scheduled for surgery on November 16, 2016...they will remove everything they can and then I will have some follow up chemo...praying is something I do constantly.
Carolynn - November 3, 2016
Hey my name is Carolyn but I go.by Kay I was diagnosed in December with stage 3 neck cancer and lymphoma I lost a lot of weight I thank god all the time for letting me live I am in remission but I do have hot spots that show up in pet scan they r watching most of the time I'm am really depressed and scared but I have a hell a support team and 5 grand babies to.live for anyone need a shoulder I'm here thanks
Raymond Wolf - October 10, 2016
This story is about praise and glory to our eternal father in heaven. In August of 2013 my wife Rita was diagnosed with a grade IV glioblastoma brain tumor. Doctor's gave her 10 months to live. She was told to go home get your affairs in order, enjoy your family and prepare to die. So sad. Well, here we are in October of 2016, over 3 years, and Rita is still alive and living her life for Christ. Message # 1 - never give up hope. The doctor's don't know only God knows the days of our lives. Though the cancer is sinister and always on the march of destruction in our lives, that is not what is most important. She now has problems with her speech and memory. Physically she has trouble with mobility (she needs a walker), it has taken all of her hearing in the left ear and most of the eye sight in the right eye. Message # 2 - Don't live your life to dwell in the agony that cancer brings in your life, because it is much to bear. Live your life to give hope an inspiration to others by spreading the word of eternal hope through Jesus Christ our savior. That's what Rita has done and effected many lives for the better.
clayton knight - MY MOMMY - September 17, 2016
Hello, it is sad to lose a Loved one, it is truly very hard to cope with. To all whom have lost a Loved one I AM SO SORRY FOR YOUR LOSES.... I have lost my mother and i am dealing with this absence just 5 days ago, i stuck by my mother and watched this monster destroy life quickly and with no mercy. If as any hope for a positive change wasn't ever prayed on and asked of the High cancer it bent on being our worst fear. I will pledge as so many others to bringing more awareness to ALL FORMS OF CANCER........YET BEING PARTICULAR REGARDING PANCREATIC CANCER....... I SHARE MY DEEPEST SENTIMENTS AGAIN TO ALL FAMILIES LOSING THIER BATTLES AND PRAYING FOR STRENGTH and Godspeed.
Deb-Paige's mom - Invisible Illnesses - September 16, 2016
We purchased purple pins today to support Paige's battle with Arnold Chiari Malformation. This battle started with a horrible headache in March of 2015 and has led to two brain surgeries over an eight month time period. New symptoms popped up daily and she was then diagnosed with POTS and EDS. Our story is pretty simple; she's a beautiful teenage girl. Her scars are hidden under her long flowing hair. She smiling and laughing and enjoying life...sometimes. Other times she confined to bed because standing means she'll faint. She's indoors all summer because she can't control her body temperature and if it's slightly too warm (comfortable for everyone else) she will get heat stroke. Her heart races randomly for no reason because that too is out of control. Then there is the headaches, they are what you would expect when your skull is too small for your brain. Only 20% of teens recover form POTS. EDS doesn't always show symptoms but it is forever. Chiari is something you take day by day hoping that you have a bit more time before another surgery. We hope that wearing the purple ribbon reminds her that she's a fighter. Not everyone that is sick has cancer.
Audrey - Its in God's Hands - September 13, 2016
Iam a 81yr old Irish decent mother,grandmother & great grandmother. in Oct. 2014,I was sent for a pap smear;it had been 40 years since I (bothered) to get one. The blood test showed some thing unusual. Had surgery, found a tumor, 3 weeks later,stage 2 cancer in the only ovary left...Levels were14, placed on chemo 2014, then remission. Felt great, thought this Irishman,beat cancer. Jan.2015 placed on chemo, 8 weeks on, 1 week off then tests.up to now Sept 2016, levels went up 856 and down again to 250, again up to 360. This cancer has brought me to my knees, back to a stronger faith in God.I really have turned it over toJesus, my attitude is postive 90 percent of the time. I'm very tired, no energy, bought a scooter to walk my dog. What ever God has in storage for me , I asked for strengthen to handle it. Don't give up.
Telisha Copney - Karyizma Mclean-Copney 4years - September 6, 2016
On July 29,2015 My granddaughter Karyizma was diagnosed with Brain cancer (DIPG) Diffuse intrinsic pontine gliomas. We were told it was highly aggressive and difficult to treat the brain tumor because it is found at the base of the brain. (DIPG) is a devastating, aggressive brain tumor of childhood. It arises in the pons, a region of the brainstem involved in critical body functions. We then tried to prolong her life by going through 6 weeks of radiation and then 6 months of chemo- treatments. Karyizma loved to dance, sing, swim and just loved to be with her family. We then started to advocate and supported all childhood cancers. All lives Matter, On July 6,2016 Karyizma won her battle and gained her angel wings. Going forward she will always be within our hearts and I support all Cancer’s adult and childhood.. we miss her so much
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